Category: In Sickness and In Health

  • Nobody wanted long COVID on our collective pandemic Bingo card, but there it is. In her “The Daily Show” interview, OG disability rights badass Judy Heumann told Trevor Noah that the likelihood of his acquiring a disability, temporary or permanent, was statistically high. He took her statement as a threat in jest, but there’s truth…

  • A little over half a century ago, zero federal laws made it illegal to discriminate against disabled people. Today’s accessibility accommodations in buildings and services were nonexistent. We have disability rights activist and supreme badass Judy Heumann to thank for sparking a national movement for the protection of disabled peoples’ rights that led to the…

  • This year, the Americans with Disabilities Act has a thirtieth candle to blow out on its birthday cake. The ADA is the widest-ranging and most comprehensive piece of civil rights legislation ever passed in the United States, and it has become the model for disability-based laws around the world. We reached out to some of…

  • By Ben Mattlin | In early March, an angry, dysfunctional couple spewed their venom on the Dr. Phil show. That’s not unusual. What was, however, was that the young man—Bailey—was quadriplegic and the young woman—Harley—was not. She was the principal provider of his personal care.“You can be his caregiver or you can be his lover. You can’t be…

  • By Ben Mattlin | Here’s what I know going in: Christina, sixty-two at the time we speak, is a professor of English and feminist, gender, and sexuality studies at Wesleyan University, in Middletown, Connecticut, and author of the memoir A Body, Undone: Living On After Great Pain. In October 2003, she suffered a severe bicycling…

  • By Ben Mattlin: When I heard that Prof. Stephen Hawking had died, at seventy-six (March 14), my first question was, What of? The media and general public seemed to assume that his disability had finally caught up with him. Perhaps it had, but I wanted to make sure. I have a similar disability. Mine is…

  • By Ben Mattlin: Back in 2012, I had the good fortune of publishing a book. That book. You know, the one able-bodied people are always telling crips to do because they’re sure it would be “so inspirational!”—in short, a memoir about growing up with a severe disability and somehow prospering. Indeed, being unable to walk…

  • By Ben Mattlin: In mid-October, disability-rights activists were justifiably outraged and dismayed by Secretary of Education Betsy DeVos’ latest action. According to the Washington Post, the Trump appointee had rescinded seventy-two policy documents related to the rights of students with disabilities. So heated were the reactions on social media and elsewhere that, a few days…